Baby with rare brain disorder defies odds and celebrates first birthday

Print

A baby born with half his head missing has defied the odds and doctors' predictions by passing his milestone first birthday.

Jaxon Buell, from Tavares in Florida, was diagnosed with a rare brain developmental disorder called microhydranencephaly. It means part of his brain and skull are missing.

His parents were given the chance to abort the pregnancy, but 13 months on Jaxon's doctors are saying he could enjoy a much longer life than ever anticipated.

Jaxon's story has also gone viral, with his Facebook page racking up more than 138,000 likes and social media users nicknaming him Jax Strong.

Wristbands have been made bearing the little boy's name and a fundraising page currently stands at $75,000 (£49,000).

His dad, Brandon, 30, posted an emotional message on Facebook to celebrate his son passing 13 months.

He said his son was "talking up a storm these days, truly teaching himself how to communicate with us in his own way".

He added: "No matter who you are or what you believe in, it’s clear that Jaxon’s tiny footprints will have a lasting impression on this world, and that he has already touched and inspired more lives in one year than most of us ever will in our lifetime.

"For his life, I am better, I am blessed, I am grateful, and I am quite simply, one proud 'Addy'. I love you, son. Well done, big guy. ?#?JaxonStrong?."

Back to top